Congenital Scoliosis

What is Congenital Scoliosis?

Scoliosis is a condition where the spine curves to the left or right. When a baby is born with a curved spine. it may be due to congenital scoliosis. While a child has this condition, it may not be noticeable for a few months or years after they are born.

Congenital scoliosis is less common than other types of scoliosis, such as idiopathic adolescent scoliosis that begin when your child is older. Overall, only one in 10,000 babies will develop congenital scoliosis.

Children with congenital scoliosis can experience complications like thoracic insufficiency syndrome (TIS). Children with TIS don’t have enough space in their chest for their heart and lungs to grow. Proper treatment can prevent these complications.

What are the signs and symptoms of Congenital Scoliosis?

• Appearance of leaning to one side
• One hip that sits higher than the other
• A shoulder blade that sticks out
• Ribs sticking out more on one side
• Rarely, weakness or numbness in the limbs

How is Congenital Scoliosis diagnosed?

Your child’s pediatrician may diagnose them with scoliosis after a physical exam. Your child will then need an X-ray to determine how big the curve is and if it’s caused by missing or extra vertebrae. Your child may also need an MRI to make sure their spinal cord (the nerves inside the spine bones) have developed properly.

In rare cases, babies with congenital scoliosis have congenital abnormalities in their heart, kidneys or lungs. At Children’s Health, we can connect your family with a team of specialists to test for these issues as well.

What causes Congenital Scoliosis?

Babies develop pediatric congenital scoliosis when they’re growing in the womb. They may have a missing vertebra, two or more vertebrae that are fused together or vertebrae that didn’t form completely.

In most cases, it’s not clear why the vertebrae don’t form correctly. However, studies show that if a mother has diabetes during pregnancy or uses alcohol during pregnancy, their babies may be at a higher risk of congenital scoliosis.

How is Congenital Scoliosis treated?

Some children won’t need any treatment for their congenital scoliosis, but they are at a high risk of needing surgical care. Your child’s spine specialist will use X-rays to monitor their spine as they grow and determine if they need treatment. At Children’s Health, we use an EOS low-dose X-ray machine. This machine makes your child’s treatment safer by reducing their exposure to radiation.

If your child’s curve doesn’t get better on its own, they will need surgery to straighten the curve. We offer surgical treatment options such as:

• Spinal fusion to connect two vertebrae together
• Removal of one or more vertebrae or pieces of vertebrae that are causing the curve
• MAGEC growing rods that hold your child’s spine straight and can be lengthened with magnets as your child grows
• Vertebral expandable prosthetic titanium rib (VEPTR) that straightens your child’s spine and can be lengthened with surgery as your child grows